What is Kemarah's Big Happy Heart?

For those of you who don't know me, and for some that do, you may not know that in January of 2011 my daughter, Kemarah, was diagnosed with a chronic heart condition called Dilated Cardiomyopathy. In other words, her heart is enlarged due to a lack of function in one of her ventricles. Like any other muscle, the heart grows when it is "worked out". Since Kemarah's heart is not working properly on one side, the other parts work extra hard to try and compensate for it, thus causing her heart to become larger than it should be. We are now 9 months into this diagnosis and I have realized one thing--I have no control over this situation! As a parent, we would like to think that we have some kind of control over what happens in the lives of our children, but we are only fooling ourselves. I have decided to create this blog for a couple of reasons: one, as therapy for myself, two, to help others cope with similar circumstances, and three, to keep others posted on Kemarah's progress.