And Fall Becomes Winter

In October 2012, Kemarah was readmitted to TCH for worsening heart failure.  This began a journey that I never anticipated.  We went through a time of fear as we discussed possible surgical options, frustration as we waited for the heart that seemed to never come, excitement as Kemarah's status was elevated again to the highest priority, disappointment that there were no "easy answers" to help her along the way, and utter exhaustion from "living" in the hospital for almost 3 months.  I will spare most of the medical details here because they tend to get very boring, and even repetitive.  Thankfully we have a fabulous team of very gifted and dedicated doctors that have to make most of the "hard" decisions for us.  We spent Halloween, Thanksgiving, Christmas, and New Year's at TCH, and I am so thankful that Kemarah was well enough to experience all of those holidays in our own unique "hospital" way.  The past couple of months have been especially trying in that it's easy to forget why we are actually here!  Our goal, of course, is to get a new, healthy heart.  We tend to get caught up in the day to day ruts of what has to be done in the meantime to carry her to transplant.  It's something that at times can seem as though is never going to happen.